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29 September 2012 @ 08:57 pm
Anyone have any pumpkin carving tips? Besides have someone else do it I mean ;P

In other news I bought these from Target. They're supposed to be slippers but since they're moccasins they could pass as regular shoes. I'm wearing them out and about anyway! The faux fur lining makes them super soft and comfortable. They have all sorts of different colors.
 
 
Current Mood: blahblah
 
 
28 August 2012 @ 10:11 pm
Hi everyone, I have lupus nephritis and I just got diagnosed with shingles! It really sucks because it's in the back of my head, unilaterally on my left side. Can anyone give me some good advice, thoughts, mojo on how to deal with it? I'm currently getting treated with anti-virals and enough percocet to kill a small animal (j/k) so I just need to ride it out for now.
 
 
27 August 2012 @ 12:19 pm
I posted a couple days ago about having a bad flair up and not being able to slow down. I ended calling in sick because it hurt to walk, and I ended up going to the hospital, and they put me on meds. I've never been on meds before for my lupus. Since I've been on them, I've felt completely nauseated and it's suppressed my appetite. Is this normal? I have to take one of my meds with food, but the thought of any food makes me feel like I'm going to throw up. I have to force myself to eat. Anyone else experience this? Any advice?
 
 
23 August 2012 @ 01:50 pm
What advice do you guys have for someone who is in the middle of a flareup but can't slow down?
For some reason my job (which I am quitting) scheduled me 7 days in a row, and I start my new job immediately after, which means I have a good stretch of days where I'm just working. My joints already hurt a bunch and its starting to hurt to walk. They said they have nobody to cover my shifts. I don't want to leave on bad terms by missing shifts, because I like shopping there. Any advice?
 
 
17 June 2012 @ 12:28 am
I haven't posted here before and honestly, I don't have lupus. My mother does have it though. I was just wondering whether anyone here had any children with problems because of it? I was born with complete heart block (which I've had a pacemaker for since I was 4) and my mother has told me that it was caused by her lupus. Of course, being born with a weak heart has caused many other problems as I grow older but I can cope quite well for a moody teenager.

Since she got diagnosed as she was having me I've always thought that it was my fault that she was ill, like it was because of my problems that caused her to be sick? I've grew up thinking about this and it was only a couple of years ago when I asked her. She said that it was nothing to do with me but I don't know if I believe her. She's not one to talk about her condition and I know practically nothing about it. The only things I've heard are usually the worst cases (as you usually do). But I just wanted to know if there was anyway that it was my fault for her being ill? I've just spent most of my life feeling guilty about it, and even when she said it wasn't my fault I still felt guilty. There's still the countless hospital appointments caused by me which she always supports me even though she has her own problems.
 
 
 
16 June 2012 @ 03:41 pm
I created an online petition back in April, urging President Obama to devote more funding toward lupus awareness and research -- you can still add your signature here! I'm heading for 200 signatures right now, which is nice, but of course the more the better.

Even if you're in a lot of pain and it's hard for you to do a lot of things, this is something that just about all of us can still manage. I really have no idea if online activism truly makes a difference, but I like to think it does -- I find that optimism and these kinds of efforts not only make a difference in the world, but also in our own attitude and outlook, which in turn affects how we feel.

Please join the fight!
 
 
Current Mood: hopefulhopeful
 
 
31 May 2012 @ 12:12 am
Hey folks, got a question here, but first some background...
I've been dx'd with SLE for 6 years now (as well as MCTD, Sclero, polymyositis, etc) and been taking Meth-x (as well as pariet, birth control pills, synthroid, folic acid and other supps, etc) for almost as long. Recently i've been having wierd episodes. About 6 months ago the following happened and eventually stoppped, but it started again last week and i though i'd ask if anyone has experienced this or heard of it...
I take meth-x injections and do them at night before bed (once per week) and take a gravol (anti-nausea med that knocks me out) and i sleep late in the morning missing all the nasty effects. Well what was happening was about 1/2 -1 hour after the injection i wake up in full on rigors. I'm so cold that i'm shaking and can't stop and literally have to pile on blankets and mittens and sweaters to warm up until eventually it stops. It lasts as long as i'm cold. The thing is i can't figure out what triggers this. I thought the meth-x but my doc doesn't think so because its not every time. in January he said it was a virus b/c my immune system takes a knock right after the injection and the virus rears its ugly head until my body can fight it off. There was insane joing pain and a fever in January, but not this time. just rigors this time... and 2 times in 6 months? i've had viruses before without this happening...? I'm unconvinced.
Any ideas? I'm seeing my doc again tomorrow so hopefully we can figure something out.
 
 
Current Mood: confusedconfused
 
 
25 May 2012 @ 08:03 pm
While this isn't about Lupus specifically, this is about an autoimmune disease. One of my friends who has Celiac posted this article which I thought was pretty interesting-

White spots on teeth could mean Celiac disease
 
 
Current Mood: draineddrained
 
 
20 April 2012 @ 05:53 pm
I started a petition on Care2 urging President Obama to devote more funding and attention to lupus research and awareness -- please sign it and help forward it in whatever way you can! I know that just about everyone's on Facebook, Twitter, all kinds of sites, so if you can promote the cause to your friends in even one other venue, that's a huge help.

I have no idea if these kinds of things really help, but hey, it's worth a try, right?
 
 
31 March 2012 @ 02:53 pm
Hello, all! Just a quick question about exercise.
I have been gradually trying to incorperate exercise into my daily routine, but I sometimes experience swelling & inflammation in my joints afterwards or if I've pushed myself too hard.
Do you guys have any tips/tricks to reduce post-workout joint inflammation? Sidenote: I'm vegan & tend to avoid most medicines.
Thanks! Hope you're all having good days!
 
 
Current Mood: chipperchipper